Table of Contents
EXECUTIVE SUMMARY
INTRODUCTION
BACKGROUND
The Tuskegee Syphilis Study
Other Examples of Research Abuse That Have Led to Distrust in Research
A New Beginning
PARTICIPATORY HEALTH RESEARCH
Defining "Community"
The Importance of Health Research
The Participatory Research Model
BASIC ISSUES
Inclusion
Excellence in Science
Collaboration and Partnership
Commitment of Adequate Time and Resources
History, Culture, Society
Trust
Power
Ethics
Policy
Education and Training
Accountability and Oversight
ACTION STEPS
REFERENCES
APPENDIX
Enhancing Community Participation to Restore Trust
and Improve Science in Health Research:
Workshop Participants
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Executive Summary
Complete Report (1.5MB pdf file)
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